FOR IMMEDIATE RELEASE

Monday, June 17, 2019

CONTACT

Andrea Palagi

Lt. Governor's Office

This email address is being protected from spambots. You need JavaScript enabled to view it.

(401) 222-2371

 

Christina Spaight O'Reilly

Rhode Island Hospital

This email address is being protected from spambots. You need JavaScript enabled to view it.

401-444-6421

 

Nat Wood

Global Alzheimer’s Platform Foundation

This email address is being protected from spambots. You need JavaScript enabled to view it.

410-507-7898

 

 

 
 
 

 

PRESS RELEASE

 

“Citizen Scientists” Honored for Contributions to Alzheimer’s Research

 

Lt. Governor Dan McKee Praises Nominees from Rhode Island Hospital for Receiving Global Alzheimer’s Platform Foundation Awards

 

PROVIDENCE, RI – Lt. Governor Dan McKee, Chair of the State’s Long-Term Care Coordinating Council and Alzheimer’s Executive Board, today honored six participants in Alzheimer’s research studies at Rhode Island Hospital for their contributions to finding treatments for the disease. He was joined by Dr. Brian R. Ott, Director of the Alzheimer's Disease and Memory Disorders Center at Lifespan Rhode Island Hospital, and John Dwyer, Jr., President of the Global Alzheimer’s Platform (GAP) Foundation, the organization that sponsors the National Citizen Scientist Awards. This is the kickoff event of the first National Citizen Scientist Week.

 

“Today we honor those who volunteer for Alzheimer’s clinical studies, and the family, friends, caregivers, and healthcare providers who support them,” said Lieutenant Governor McKee. “Though we all have a role to play in ending Alzheimer’s, none is more important than that played by our Citizen Scientists.”

 

The six nominees from Rhode Island Hospital for National Citizen Scientist Awards are:

 

  • Deborah O’Brien (Hopkinton, RI) – Deborah cared for both of her parents when they had dementia, and now travels 137 miles roundtrip every month to participate in a clinical trial. “My family went through so much pain because of Alzheimer’s. I don’t ever want another family to go through that,” she says.

 

  • Barbara Silva (South Kingstown, RI) – A fourth-degree blackbelt, Barbara has brought her combative spirit to the fight against Alzheimer’s. “Get involved in research now! The longer you wait, the more you lose,” she says to those on the fence about joining a clinical trial.

 

  • Nancy Curran (Newport, RI) – Nancy, who worked with Alzheimer’s patients when she was an occupational therapist, says, “I have hope and I want people to know there is hope. It’s nothing to be ashamed of. It’s something I’m going to fight because that’s who I am.”

 

  • Michael Russo (Scituate, RI) – Michael’s father lost his battle with Alzheimer’s 12 years ago, prompting Mike to look for opportunities to join an Alzheimer’s study. “As soon as I met Dr. Ott and his team, I told them I would do anything they asked of me. Alzheimer’s research is too important to hold back,” he says.

 

  • David Gallogly (South Kingstown, RI) – David’s daughter Katie accompanies him to appointments. “Everyone has been so friendly. It’s nice,” she says. “It’s like we have our little dates, and it’s sweet.”



  • Pamela Moorby (Warwick, RI) – Pamela has volunteered for seven studies since being diagnosed with Alzheimer’s. “I tell my story to make people less scared of research,” she says.

 

“Alzheimer’s research, and society in general, need more people like the individuals and couples we are celebrating today,” said GAP Foundation President John Dwyer. “Their contributions are remarkable and each has noble reasons for volunteering for a study. If you’re concerned about your memory, or you have a diagnosis, or you’re over age fifty, healthy and you care about finding a cure, you can join these citizen scientists in the urgent fight against Alzheimer’s by contacting a research center near you.” 

 

Research participants may learn about their personal health condition or have access to experimental treatments while they are part of the team that is seeking a cure. Even so, nine out of ten Alzheimer’s disease trials experience delays because of recruitment difficulties. The Global Alzheimer’s Platform Foundation works with more than 70 leading research centers, including Rhode Island Hospital, to speed and improve clinical trials.

 

“Our main limitation to achieving disease-modifying treatments now is not a lack of promising therapies for Alzheimer’s disease,” said Dr. Ott.“It’s a lack of sufficient volunteers necessary to move clinical trials to completion as quickly as possible.”

 

Alzheimer’s currently affects 23,000 Rhode Island seniors, with that number projected to rise to 27,000 by 2025 if no effective treatments are found.

 

##

 

 

 
 
 

 

FacebookTwitter

 
 
 
 
 
 

 

Lieutenant Governor's Office | 82 Smith Street, Providence , RI 02903

 
 
 
 
 
 
 
 
 

 

Big tech companies are coming under the scrutiny of the Justice Department. The DOJ has opened an antitrust review of whether companies such as Facebook, Google, Amazon and Apple pose antitrust threats. The goal of the probe is to look at the competitive conditions in the online marketplace and to see if any violations have taken place.       President Trump is expected to sign a bill to extend funding for healthcare for 9-11 first responders. The Senate gave final passage to the measure today on a 97-2 vote. The fund provides assistance for first responders and others who were exposed to deadly toxins at Ground Zero after the 9-11 terror attacks.        Former Special Counsel Robert Mueller [[ MULL-er ]] wants one of his deputies by his side when he testifies in the House tomorrow. Mueller's deputy Aaron Zebley has been asked to be sworn in for tomorrow's hearing. Democrats who run the two committees where Mueller will testify are considering the request.       FBI Director Christopher Wray is declaring China the top counterintelligence threat to the U.S. Wray said the FBI is looking into over a thousand cases of U.S. intellectual property theft out of China. Wray called China's efforts deep and diverse.        Several family members are being charged over a fight at Disneyland that was caught on camera. Avery Robinson is facing five felony charges over accusations he attacked his sister and girlfriend. Two others are charged with misdemeanor counts of battery. Video of the brawl has been viewed millions of times online.        There's going to be a sequel to the hit 1988 film Coming to America. Arsenio Hall confirmed that he and Eddie Murphy are on board for the film. The original 1988 film starred Eddie Murphy as a crown prince of a fictional African nation who travels to Queens, NY to find his future queen.